Is “popular” mental illness a bad thing?

Earlier today I was reading this piece from Annie Stevens on Daily Life.

I say ‘reading’, but I mean ‘shouting at’.

I think I probably understand her point. Mental illness has been popularised by shows like Girls and maybe United States of Tara and even Offspring.

I’ve talked before about how I don’t mind if someone exaggerates (or even fakes) a mental illness, if it means that people are at least having conversations about it. I don’t believe that portrayals of mild (or “functional”, as per the article) anxiety in popular culture could dilute wider understanding of them to the detriment of those with anxiety disorders.

Maybe people on the outside think we’re having a mental illness competition. You’re not as anxious as me. You’re not as detached from reality as me. I’ve attempted suicide eight different ways and you’ve only tried six. Evidently the severity of my illness will be diluted by other people with their pretend anxiety. I should be outraged by people saying “I’m anxious” when actually I am anxious. You’re not anxious! I am! You think you know what anxiety is? WELL YOU DON’T.

Anxiety in particular has huge variance in its manifestation: phobias, irrationalities, lack of control, detachment, fear, panic. Yesterday I literally drove to the supermarket one tree at a time (“Now drive to the next tree”) because I was so afraid, and yet I don’t begrudge anyone the right to feel anxious and to voice that feeling.

So why is the media outraged on my behalf?

This is semantics. “Anxious” means uneasy or nervous. If you’re afraid to get on a plane, you’re anxious. If your heart is racing because you need to give a speech in front of a thousand people, you’re anxious. If you can’t remember your name or where you live because your brain has packed up and left, you’re anxious. Using this word–this apt word–to describe these feelings does not make any of them less legitimate. It does not make my personal pain any greater, or detract from the things I am experiencing.

Perhaps it helps me to go to someone and say, “Actually, I’m not sure I’m up to that right this minute, I’m feeling quite anxious.” and the other person says, “I understand, my sister/mother/friend/daughter feels like that too sometimes.” They don’t need to know the ins and outs of my particular breed of anxiety; they just need to have some point of reference for “anxiety” as an actual thing that people experience, whether it is functional or not.

A man down the street has a twisted ankle. He says “Far out, my ankle really hurts!” And the lady across the road has a broken leg. She stands out on her nature strip and shouts to the man: “You don’t even deserve to say that your ankle hurts until you’ve walked a mile in my shoes!” That’s how it happens, right? The woman with the broken leg’s pain is directly (and negatively) affected by the man with the sore ankle, yes?

Or maybe what they’re both saying is, “It’s lucky everyone is aware that legs can hurt and we should try to mend them when they are broken.”

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The mother who never does anything

I realise I’ve been quite heavy on the whole ‘I am such a bad mother because I don’t like going outside’ this week, but I’m afraid it must continue for one more day.

This is a piece I wrote for the ABC’s very important disability portal, Ramp Up. None of this will be new to you, you poor, patient loves, but I truly can’t remember the last time something was this hard to write.

You can read it here: http://www.abc.net.au/rampup/articles/2013/03/28/3725722.htm

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When I went to choir and it was fine

Some of the smallest things I accomplish take the most work.

Like tonight, Georgia had an open choir rehearsal, which meant all the parents could come along and listen. I lost my head about it all day: this is the kind of thing a kid will remember you not coming to, your mother didn’t go to your choir things and look at all the therapy you’ve had, you will let down every person in the world if you don’t go. As you might imagine, by 5:30pm I was crying in my bed like this:

mussolini

 

(Don’t judge me; I’m growing out my fringe.)

I was under no illusion that I would make it to the choir rehearsal or ever again have a relationship with my daughter. Gaz and I sat in the car and I made strange hiccuping noises and said I caaaaaaaan’t a lot, so we drove around the block a few times because sometimes it helps to pretend you might actually do something.

Then my dad came around, because evidently this was now a huge ordeal and I needed multiple people to hold my hand, and we all sat in the car for a bit longer and I went No seriously I caaaaaaan’t. The two of them tried to trick me by telling me we would just go to the supermarket. I was wise to their game, but I humoured them and we went to the supermarket. Then I humoured them some more and went to the pub, where I had a small meltdown because no one would let me play the pokies.

But after that was over, I pushed on and we eventually made it to choir. We were 20 minutes late, and I thought I was going to pass a kidney stone, but Georgia didn’t notice. She sang, and we sang along (we were asked to, I wasn’t just being that creepy parent who is living vicariously through her child’s accomplishments, although I guess that could have been a small factor). Afterwards I felt like a million bucks, what with having gone less than 5 kilometres from my house (mostly just floating on a river of tears), so we all went out for dumplings.

The chasm between how it feels to succeed and how it feels to fail is monstrous. To fail means to disappoint everyone (mostly yourself), and next time to feel the fear again, and again. The brain is surprisingly quick when it comes to establishing routines, and if you give it a reason to think that ‘being afraid’ is the routine, that’s what it will do. On the other hand, whilst succeeding can be horrifying while you’re doing it, because what if you suddenly just fall off the world and into space, it’s about three steps forward. It isn’t just about succeeding that time, but also about pushing through a fear and demonstrating that you can do it, so that next time you try to, you’ve set a precedent. Precedent is everything in an anxiety disorder, whether good or bad.

“I failed to do it last time (and so I’ll probably fail again this time)” is the life blood of the anxious mind, but it settles in to “I succeeded last time” fairly quickly too, if you can find a dad who is willing to tell you ugly things that you don’t want to hear but need to, or just someone who can drive you while you close your eyes.

So I am not dreadful after all, at least not for today, and that’s about as far ahead as I can plan these things anyway.

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Writers Victoria: Session 1

As part of my Quest to Find Meaning, I applied to do a mentorship with Writers Victoria. I love those guys. They are dream enablers, with all those courses to teach you how to satisfy that little person inside you who has always wanted to be a writer. I’ve been a member for about three years and have never gone to a single event, but have often flipped my wallet open to reveal my membership card. ‘Oh yes,’ I say, ‘as a writer, it’s important for me to be a member.’

Tonight I had my first Skype session, talking through my 6000 word excerpt with Bethanie Blanchard from Crikey’s Lit-icismI was immediately compelled to turn off my video, as she was clean and beautiful and I looked like I’d been attacked with a ham. Then we did the thing with our brains where I said what I was trying to say and she said what she thought I had said.

You know sometimes you spend a lot of time on something in the faraway hope that someone else will appreciate it, maybe, if you’re not too awful a person? In some ways I am quite self-assured, going about my day thinking I’m okay at some of the things. But when it comes to writing, I am (as many writers are, I’m sure) never convinced that anything I do is much short of completely dreadful. Intellectually I know that the words I put together convey the message I was hoping for some of the time. But at a spiritual level I am always just waiting for the time someone taps me on the shoulder and says, ‘Anna, we’ve decided you should stop now.’

Tonight, and maybe it is a bit uncouth to say this aloud, but this extraordinarily lovely woman told me she had read what I’d written and that it was beautiful and polished. That no sentences were wasted. And that she “struggled to fault [my] prose.” After I’d hung up the Skype call and done a little dance on Twitter, I sat at my desk and I cried and cried.

(You would be right in thinking this is something that I do a lot. I have developed a special funnel that goes from my eye sockets to the bin next to my filing cabinet, to avoid unnecessary spillages.)

After the past few months of hiding in the dark, it gave me such a lift to think that my life’s great goal might still be intact.

(See you tomorrow from inside my bedroom, where I’ve made reasonably good friends with the monsters.)

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The sky is falling! The sky is falling!

When I started blogging again, I thought I would be quiet. You know, only blog when you feel like it. Only blog when you have something to say. I didn’t expect to be this quiet, or have so little to say.

I kept telling the people I live with that I would have a nervous breakdown. If someone else doesn’t take the kids to school for one bloody day, I will have a nervous breakdown! If I don’t get one night away from you people, I will have a nervous breakdown! What I really meant was, just give me some time to myself because I’ll cry if you don’t, but evidently I was able to talk myself into it. I woke up one morning several months ago and nothing made sense. I looked outside and couldn’t remember where I lived. A more rational person might have thought, I wonder if I’ve had a stroke, but I recognise a psychotic break when I see one so instead I thought, I wonder if someone spiked my dinner.

It wasn’t too bad at first. I started to struggle with long distances, because I couldn’t quite remember how to get home again. Then I developed a phobia of the hours between midday and 4pm. After that I sat in my house and went, “What the fuck.” a lot, and after a few weeks of that I decided I should probably visit my doctor (before midday).

I rang my counsellor of many years and bleated at her, probably things like I’m afraid to go to the supermarket and My brain has been replaced by an owl’s nest. She had moved her rooms from around the corner to the CBD, but because she is an amazing life saver she offered to come to my actual house and talk me out of my growing list of woes. I’ve been seeing her twice a week, and now I can do things like get my kids to school without breaking down and crying, so that’s a good indication of progress. We’re doing some hypnosis, some CBT and some reflexology and my homework every night is to think about the things that frighten me and imagine a ball of warm comfort in my belly. Sometimes I help it along by eating chocolate and imagining that the chocolate is the ball of warm comfort. Sometimes it is harder and I have to eat 1-2 blocks of chocolate to really feel it.

After long talks–bless her for humouring me so convincingly–I made some decisions about my life. Not easy decisions, the other kind.

I quit my job. I tortured myself day after day, sitting in my car on the side of the road on the phone to my mum, just going, “I CAN’T DO IT MUM HELP!” until I conceded defeat. I was not going to get better if I was beating myself up every morning because I was only making it 80% of the way to the studio. So I no longer work for Neighbours, which means I guess we can’t be friends anymore because it’s so awesome.

After I quit my job, I sat down with a piece of paper and wrote WHAT DO I EVEN LOVE ANYMORE? at the top. Under that I wrote My children. I couldn’t think of anything else for a few minutes. Then I wrote Feeling accomplished and Sleeping. When I thought about what made me feel accomplished, I wrote Living authentically, Working for myself and Being patient. I probably only wrote “living authentically” because Tony Robbins was channelling himself through me or whatever.

So I have thrown my full self into my freelance work–writing and social mediaing and building websites–which is rewarding, stimulating and low stress. I mean, the work is stressful, sometimes. But that’s the kind of stress that is logical and energising to me and I love it. Working hard is easy. Working hard on the other side of town is not as easy.

In the meantime, I am taking it slow and being gentle with myself. My therapist calls my agoraphobia ‘atypical’, because I actually do like going outside and doing things, and there are a lot of times when I do enjoy it. I need to build myself up again (they call this ego strengthening, but not in the boob job way) and then I’ll be off. Maybe just to the supermarket, but that’s a good start.


I thought very hard about whether I wanted to share this in a public forum. Obviously I don’t want to give people a reason not to employ me, because I have to feed my family. But I am both a person with a mental illness and a damn hard worker. If the fact that I sometimes cry when I have to leave the house is a good enough reason not to work with me, then I probably don’t want to work with you either. So there.

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Give us some space to think

I am a person with feelings. Maybe more feelings than is strictly necessary, but that is neither here nor there.

The internet is full of people with feelings. Strong feelings. It is a hive of hyper-awareness, a rushing river of emotionally charged issues. When the internet rises, it has the collaborative power to bring about great change in areas that previously have been swept under the carpet. The internet forces accountability for public figures. It addresses issues of transparency in government. It serves as a platform for people to stand up and say, “Hey, what you’re doing is not okay with me.”

There is some bad activism happening on the internet. Lazy activism. ‘Share this photo on Facebook and you will save the lives of all the women bought into sexual slavery.”

But there’s good activism, too. People with big voices and the ability to influence and effect change.

Mega high fives to those people, they are the bomb/banning the bomb.

The thing is, at the other end of that scale, beyond even lazy and bad activism, there is another type of internet predator that plays on our emotions. Sensationalist online journalism. Or pretend journalism. People and media outlets that need everyone to be astounded and incensed by all the things, all the time.

Internet, please, stop telling me how I should feel!

I waddle my way through my online life, reading the things that affect me or interest me or tickle my funny bone. I frown, I cry, I write letters, I make phone calls, I laugh, I share, I admire. When it comes to taking the internet seriously, I probably sit somewhere in the middle, between “outraged by everything” and “watching cat videos in my underpants”.

But the internet shouts.

As I push my way around, through strange new social networks full of porn and clever new websites for people with brains, the internet tells me how I feel about things.

You will love this!

You have to see this!

This will change your life!

You will be so angry when you read this!

This will change the way you think about your kids, your husband, your dog, your mother and that guy at the supermarket!

By the time I’ve been on the internet for ten minutes, I am exhausted. I don’t know who I am or where I live.

I like the internet because it gives a voice to people with feelings. Those genuine, powerful, emotive voices encourage other people with other voices to think. And when everyone is thinking (not shouting), that’s when the real change happens.

When you force your hyperbole on us, you dilute the voices. People who have real opinions about things are drowned out by your insistence that we all watch a YouTube clip because otherwise we will never again find meaning in our puny lives. You’re a diversion and a distraction, taking away attention from the things that really deserve the space in our brains that has room for feeling ways about things.

Knock it off. Seriously*.

* videos of kittens excepted.

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The danger of expectation

Unfortunately, speaking about mental illness in an online space doesn’t cure you of that mental illness.

Sometimes people ask me to talk about my anxiety in a public forum. I have no anxiety about being the centre of attention or speaking in front of a large crowd, but I am reasonably open about my agoraphobia. And they say, “Can you come and speak to these people 1000km from your house?” And I say, “Well, not really.”

For the most part, the person writing about their mental illness on the internet can’t separate the two spaces. One doesn’t punch out a blog about how dark the world is and then go and have the best time with their mates at the pub. The person behind the piece about coping with mental illness is, in fact, trying to cope with their mental illness.

If this seems obvious, kudos to you.

(I hope this doesn’t apply to me, but I suppose there’s every chance that it could, given that I do go through periods of being quite unpleasant.)

In the past 24 hours, more than one person has made a comment that effectively suggests that people who talk about their mental health issues in their own space (e.g. their blog or social media) should be prepared to step up and give back that support to other people who need it.

Yes, ideally we would all give each other exactly the same level of support and recover from our mental illnesses at the same rate.

The danger is that we are suggesting that if you receive support for a mental health issue, you will be obligated to give back (sometimes proactively) equal or more support to others who are suffering with mental health issues. And therein lies the extraordinary challenge of a supportive community around depression, anxiety and other common mental ailments: sometimes you just can’t. 

By their nature, these kinds of mental illnesses can be solitary, introspective, isolating and alienating. If you are a person who is struggling to keep your own head above water, where is the part of you that has the wherewithal to offer support to someone else? Do we actually want those people to spend the energy they would–and should–be spending on themselves to invest it in someone else’s issue? It would be great if everyone experiencing these kinds of barriers to life could just collect their wits and invest in others going through the same thing, but sometimes you just can’t. The fact that someone has had the guts and motivation to write openly about the issues they are facing does not separate them from the illness that has got hold of them.

If we are people who are empathetic and able to offer support to those who are suffering, and who have had our own issues to cope with and work through, surely we also understand that we are not helping anyone by heaping on our expectation that they will give back? Immediately, if possible?

It is not a game and it is not a competition: if someone you care about is going through a period of difficulty, you offer them as much as you can, however small. If you share your support for people in the hope that you can then get some back then, frankly, you’re not helping at all.

A group of people all experiencing mental health issues sometimes doesn’t have the external strength to be collectively buoyant. And sometimes it does. But the expectation should always be that people will do as much as they are able. If someone is in a pit of despair with no conceivable way out, we should cut them some slack. If someone is in an up cycle and has lucidity and levity in their life, maybe they can go a little extra way. But they don’t have to.

My aim in writing about my own mental illness issues and writing about mental health generally for other publications is to open a dialogue. That’s a dialogue that people take up at their own pace. I am very open about my mental illness and have been for years. Others are just starting to come to terms with even saying it out loud. There are many people who might be sitting on the fence, those who need our (or anyone’s) help but who are not quite ready to ask for it, who we (or others) risk alienating because of their perceived obligation to those who support them.

“I want to talk about how some days I feel like I’m dying, but I don’t think I have the emotional strength right now to even say thank you to everyone who is nice about it, so I guess I won’t talk about it at all.”

Is that what we want?

Putting qualifiers on the support we give to people who are suffering is to the detriment of everyone: those who do a lot, and those who do little. Because we’re all just pushing our own cart as fast as we can, and speaking openly about it doesn’t change that.

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